Denmark
The Danish Rheuma Biobank holds biological material such as blood and tissue samples from thousands of Danish patients with inflammatory arthritis. The aim is to have personalized medical treatment early on in the disease pathway. Over 3400 blood packages from more than 2000 individuals are collected in this clinical biobank.
| Name of the connected EIT Health partner: | Lasse Boding |
| Number of individuals: | Total 2,133 |
| Biobank confirmed willingness to provide samples/data for EIT Health studies: | Yes |
| Contact person(s) and contact data (e-mail address, tel. no) for access purposes: |
Estrid Høgdall Estrid.hoegdall@regionh.dk |
| Number of samples: | Total 3,450 |
| Sample types: | Blood packages |
| Omics data: | Not available |
| Website: | Danish Rheuma Biobank |
| Type of biobank: | Clinical. |
| If longitudinal the frequency: | Yes. |
| Link to central portal to seek samples and data: | Danish Biobank Register www.biobanks.dk |
| Broad consent: | Yes. |
| Option to recall donors: | No. |
| Option to recall family members: | No. |
| Link to operational procedures: | Nationwide SOPs. |
| Storage: | Controlled storage. |
| Compliance with international standards: | Align with international guidelines. |
| Current ISO certificates: | Not available. |
| Clinical data linked to samples: | Data on samples such as diagnosis codes and primary organ. |
| Omics data available: | Not available. |
| Data standards: | Not available. |
| Data security rules: | Not available. |
| Research support, what type of expertise?: | Knowledge about research, guidance on extractions and cohort selection. |
| Core facility services; what type? Link?: | Not available. |
| Queries from national health registers: | Capacity to perform analysis. |
| IP rules, what is negotiable?: | Not available. |
| Requirements to study results (access etc.): | Not available. |
| Participant’s right to the information: | Not available. |
| Number of access contracts with industry: | Not available. |
| Statistics about access if available: | Not available. |