Danish Twin Register

The Danish Twin Register is the oldest national twin register in the world, with information about twins born in Denmark over the last 140+ years. The Registry contains information about more than 86,000 twin pairs, as well as data from a number of triplets and quadruplets. Omics data are available from selected samples from up to 1200 individuals.

Key facts

Name of the connected EIT Health partner: Lasse Boding
Number of individuals: Total 18,998
Biobank confirmed willingness to provide samples/data for EIT Health studies: Yes, we are willing to collaborate and provide samples, with an internal representative
Contact person(s) and contact data (e-mail address, tel. no) for access purposes: Jonas Mengel-From, Biobank leader of the Danske Twin Register
Number of samples: Total 3,450
– total 72,174
– 13,468 Buffy coat
– 13,247 DNA
– 11,372 Filter Paper
– 14,775 Plasma
– 4,011 RNA
– 13,854 Serum
– 1,447 Urine
Sample types: Blood packages
Omics data: Selected samples from up to 1200 individuals
Website: Danish Twin Register

General information

Type of biobank: Population-based studies of twins.
If longitudinal the frequency: Selected cohorts have repeated samples, longitudinal with up to 12 years of repeated sampling.
Link to central portal to seek samples and data: Danish Biobank Register
Broad consent: Contact Danish twin register. Currently consents are available dependent on health and age.
Option to recall donors: Yes.
Option to recall family members: Yes.

Biobank access procedure:

Major terms for access: Please see:
Ethical and legal compliance: Danish law
Speed and reliability of delivery: Not available.
Pricing: Not available.

Quality management system:

Link to operational procedures: Not available.
Storage: Samples are handled and stored according to standard procedures.
Compliance with international standards: Not available.
Current ISO certificates: Not available.


Clinical data linked to samples: Samples can be linked to clinical data in registries. Questions of health and disease are available from assessments by request.
Data standards: Data are handled and secured according to internal procedures.
Data security rules: Data are handled and secured according to ownership agreements.

Biobank related service:

Research support, what type of expertise?: Data managers, statisticians, laboratory staff.
Core facility services; what type? Link?: Storage and distribution. Some analytical expertise is available through Odense University Hospital.
Queries from national health registers: Not available.


IP rules, what is negotiable?: Not available.
Requirements to study results (access etc.): Not available.
Participant’s right to the information: Not available.
Number of access contracts with industry: Mainly we are working with academic and hospital partners, but we have previously worked with industrial partners.
Statistics about access if available: Not available.